Patient and Clinician Perspectives on Symptom Priorities Across the Spectrum of Neuroendocrine Tumors (NETs)

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Introduction: NETs are associated with a range of symptoms, and symptom reduction is a common treatment target. Identifying priority symptoms across NETs can help inform clinical trial endpoints.

Aim(s): To identify priority symptoms from qualitative interviews with a sample of NET clinicians and patients.

Materials and methods: Experts: Providers were interviewed to identify priority symptoms in patients with gastrointestinal (GI), pancreatic (Pa), and lung NETs, with or without carcinoid syndrome (CS). Patients: Patients > 18 years old with a confirmed GI, Pa, or lung NET diagnosis were recruited from 2 outpatient clinics in the US and on-line advocacy groups. Semi-structured interviews were conducted to identify priority symptoms. Data were analyzed using qualitative methods.

Conference: 15th Annual ENETSConcerence (2018)

Presenting Author:

Authors: Kaiser K, Webster K, Shaunfield S, Greene G, Yount S,

Keywords: neuroendocrine tumors, priority symptoms, qualitative methods,