The Neuroendocrine Tumor (NET) Patient (pt) Perspective: Results from the First Global NET Pt Survey - A Collaboration Between the International Neuroendocrine Cancer Alliance (INCA) and Novartis Pharmaceuticals

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Introduction: Despite a rising incidence of NETs, few studies document the NET pt experience. We present data on quality of life (QoL) and the global NET pt perspective.

Aim(s): To raise awareness of the NET-related burden and share pts’ perspectives on NET, medical team (MT) interactions, and educational needs.

Materials and methods: Anonymous survey of NET pts from >12 countries conducted by INCA/Novartis in 2014 (Americas, Asia, Europe, Oceania) on the NET pt experience, including disease impact, MT interactions, knowledge/awareness, and information needs. This NET patient survey was a collaboration between INCA and Novartis and the survey was funded by Novartis.

Conference: 12th Annual ENETSConcerence (2015)

Presenting Author:

Authors: Leyden J, Sissons M, Goldstein G, Kolarova T, Bouvier C,

Keywords: Quality of life,