Abstract library

12 results for "communication".
#1345 To Evaluate How the Outcome of Neuroendocrine Tumour (NET) Multidisciplinary Team (MDT) Meeting Decisions Are Conveyed to Patients at a ENETS Centre of Excellence (The Christie) and How This Service Can Be Further Improved
Introduction: It is recommended that people with cancer should be managed by an MDT and the outcomes should be communicated in a “timely manner”. However, it does not specify when this should be done, or by whom.
Conference: 13th Annual ENETS conference (2016)
Category: ...none of the above
Presenting Author: Christina Rigby
Authors: Rigby C, Mansoor W, Valle J, Hubner R, ...
#1319 Neuroendocrine Cancer Patient Experience Survey
Introduction: Annually a national patient cancer survey (NCPES) is performed to assess perceived patient care. It was noted that in the previous cancer experience surveys patients with NET had not been invited to participate. The NET Patient Foundation (NETPF) commissioned Quality Health to undertake this survey in patients with a known diagnosis of neuroendocrine cancer. The patients were identified via NET centres of excellence around England.
Conference: 13th Annual ENETS conference (2016)
Category: Epidemiology/Natural history/Prognosis - Registries, nationwide and regional surveys
Presenting Author: Catherine Bouvier
#2146 Clinical Utility (CU) Evaluation of the Health-Related Quality-of-Life (HRQoL) QLQ-GINET21 Questionnaire (QNR) in the Treatment of Patients (pts) with Gastrointestinal (GI) Neuroendocrine Tumors (NETs). QUALINETS Study
Introduction: QLQ-GINET21 for pts with GI-NETs covers muscle/bone pain, body image, information, sexual function, symptoms, social function and disease-related concerns.
Conference: 15th Annual ENETS conference (2018)
Category: Medical treatment - others, not specified
Presenting Author: Guillermo de La Cruz
Authors: Gallego J, Reig O, Sastre J, Garcia I, ...
#185 Czech Neuroendocrine Registry - First Results
Introduction: The Czech Neuroendocrine Registry was started in October 2009 as a platform that should facilitate the data based on communication among various specialists treating NETs.
Conference: 8th Annual ENETS Conference (2011)
Category: Clinical
Presenting Author: MD Jaroslava Barkmanova
#389 Czech Neuroendocrine Tumor Registry - 28 Months Results
Introduction: Cooperative Group for NET was established on 22 April 2008. It continues with the practices of the Czech Carcinoid Group since 1998. The real incidence of neuroendocrine tumors is unknown. The majority remain undiagnosed. Therefore, the Czech Registry started in October 2009 to identify NET patients and to facilitate the diagnosis and therapy in centers with NET experts.
Conference: 9th Annual ENETS Conference (2012)
Category: Clinical
Presenting Author: MD Jaroslava Barkmanova
#740 Heterotopic Pancreatic Tissue Located in the Subserosa of the Jejunum: A Case Report
Introduction: Ectopic pancreas is defined as pancreatic tissue in an abnormal location with no ductal, anatomical, neuronal or vascular communication with the main body of the pancreas. The incidence of heterotopic pancreas in autopsy studies is approximately 0.6 - 15%, while the clinical incidence is 1 in 500 laparotomies. Ectopic pancreatic tissue can be present anywhere along the gastrointestinal tract.
Conference: 10th Annual ENETS Conference (2013)
Category: Clinical cases/reports
Presenting Author: MD Christos Barkolias
#1291 How Long Is the Piece of String? – How Patients Negotiate the Uncertainties of a NET Diagnosis
Introduction: NET Patient Interviews
Conference: 13th Annual ENETS conference (2016)
Category: ...none of the above
Presenting Author: Dr David Wyld
Authors: Wyld D, Plage S, Burge M, Broom A, ...
Keywords: Interviews
#1646 Patient Satisfaction Regarding Home Injection Service for Somatostatin Analogues: A Survey Among Patients with a Neuroendocrine Tumour
Introduction: Depot somatostatin analogues (SSA) Sandostatin LAR® (SL) and Somatuline Autogel® (SA) injections, are facilitated by a professional home injection service.
Conference: 14th Annual ENETS conference (2017)
Category: Medical treatment - SMS analogues, interferon
Presenting Author: Wanda Geilvoet
#1696 On-going Evaluation of The Clinical Utility of the Health-Related Quality-Of-Life (HRQoL) QLQ-GINET21 Questionnaire (QNR) in the Treatment of Patients (pts) with Gastrointestinal (GI) Neuroendocrine Tumours (NETs). QUALINETS Study
Introduction: Outcome measures reported by pts help to weigh benefit/effect of a therapy on quality of life (QoL), provided that their utility in clinical practice is proved. There are few QoL QNRs for pts with NETs, like QLQ-GINET21, with 21 items assessing muscle/bone pain, body image, information, sexual function, symptoms, social function and disease-related concerns.
Conference: 14th Annual ENETS conference (2017)
Category: ...none of the above
Presenting Author: Dr. Javier Gallego
#2010 A case of Carcinoid Crisis Despite High Dose Somatostatin Analogue Therapy Peri-operatively
Introduction: Carcinoid crisis is a life threatening endocrine emergency. Somatostatin analogues (SSA) are recommended as prophylactic administration before invasive procedures. It remains unclear whether there is an optimal dose of prophylactic somatostatin analogue therapy in the peri-operative period.
Conference: 15th Annual ENETS conference (2018)
Category: Case reports
Presenting Author: Deborah Pitfield
Authors: Pitfield D, Casey R T, Seetho I, Shaw A, ...