Introduction: Conservatively,the incidence of NETs is 7 / 000' p.a, however,the prevalence of patients living with NETs is higher,40/000',making it the 2nd most common GI malignancy after colorectal cancer.Patients are living longer,however,with impaired quality of life.Management of debilitating symptoms such as diarrhoea,fatigue,anxiety,and flushing are complex and heterogenous.
Aim(s): With >60% having metastatic disease at diagnosis,transition to community delivery of SSAs,average travel of 300km to NET COEs leading to reliance on GPs,Unicorn Foundation wanted to evaluate their needs in education,in the diagnosis and ongoing treatment and care.
Materials and methods: From Nov 2018-Aug 2019,NET patients nominated their treating GP to participate in a 21-question online/paper survey.
Conference: 17th Annual ENETS Conference 2020 (2020)
Category: Trials in Progress/Trials in Concept
Presenting Author: Simone Leyden
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