Czech Neuroendocrine Registry - First Results

#185

Introduction: The Czech Neuroendocrine Registry was started in October 2009 as a platform that should facilitate the data based on communication among various specialists treating NETs.

Aim(s): Well-controlled registration of patients with NETs with their risks and prognostic factors, therapeutic strategy and associated therapeutic results.

Materials and methods: Non-interventional, epidemiological, multicenter clinical registry with fully standardized clinical records, using electronic CRF, managed through on-line accessible forms. Data are collected as anonymous records with encrypted personal data of patients. All data collected concern the diagnosis of NETs. There is no recruitment of patients.

Conference: 8th Annual ENETSConcerence (2011)

Presenting Author:

Authors: Barkmanova J, Novak J, Vitek P, Sedlackova E, Honova H,

Keywords: neuroendocrine registry, population-based system, neuroendocrine tumors (NETs),