International Patient Survey of Physical, Emotional and Informational Challenges when Living with NETs: Understanding the Unmet Needs Abstract #1767

Introduction: The usefulness of information sources used by NET patients is rarely explored by patient surveys of disease burden/impact on daily living, and may be key to optimizing care.
Aim(s): Identify unmet needs/possible solutions for information/support to address NET patients’ physical, emotional and informational challenges.
Materials and methods: The Carcinoid Cancer Foundation (CCF), Netzwerk Neuroendokrine Tumoren (NeT) e.V. and Association de Patients porteurs de Tumeurs Endocrines Diverses (APTED) approved questions; patients registered with the respective websites were emailed links.
Conference: 14th Annual ENETS conference (2017)
Category: Epidemiology/Natural history/Prognosis - Registries, nationwide and regional surveys
Presenting Author: Dr Mohid Khan

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