The Database

Milestones

 

 

 

Nov 2013

Begin of specification

Oct 2014

Begin of software development

Mar 2015

Beta version

Jun 2015

Version 1.0

Jul 2015

First national registry starting with data entry

Aug 2015

Data transfer from first existing national database to ENETS being prepared

Oct 2015

User manual and website

Jan-Dec 2016

Adjustment of legal formalities, contracts

Mar 2016

Data transfer from second existing national database to ENETS being prepared

Jan-Dec 2017

Continuation in the adjustment of legal formalities, contracts

Mar 2017

New partner for direct data entry and new partner for data transfer

Jun-Nov 2017:

Analysis of a first set of data (including data from seven national registries) for the first «ENETS registry article» (Target: ENETS 2018, ASCO 2018)

Mar 2018

Presentation of the results of the first analysis durch the Annual Conference in Barcelona

June 2018

Presentation of the poster at the ASCO 2018

 

Downloads

  • User manual » pdf
  • TNM staging » pdf
  • ECOG Score » pdf
  • Toxicities, CTCAE version 4.03 » pdf

Links

FAQ

 

Q: How can I get access to the database ?
A: Please go to “How to apply a NET registry?” section and follow the instructions.

Q: How many users are possible per center?

A: 3 users per center

Q: I lost my password
A: Please contact registry@enets.org

Q: I have questions concerning the rules of the ENETS registry
A: The ENETS registry aims at improving the documentation of the disease, developing a quality-management system for the diagnosis and therapy of NET. If your country already  has its own NET database, a transfer of the data into the ENETS registry is possible. In case your country does not have a registry, the ENETS registry offers the possibility to perform direct entry. Please contact registry@enets.org

Q: I have problems with the database
A: Please go to “The Database / Downloads" section and open the user manual ». If you do not find any answer to your question, please contact registry@enets.org

Q: I meet problems to save my data

A: Several fields are mandatory. The missing data will be shown in a popup window top right. If mandatory fields stay blank or don´t change their status from “please complete” or “not answered yet” to any accepted status, the particular form cannot be saved.  The value “not known” is an accepted value.
Please go to “the database” section and download the user manual.

Events

 

The next annual ENETS registry meeting will take place
during the 15th Annual ENETS Conference, 7-9 March 2018 in Barcelona
(time and meeting room to be confirmed)

at CCIB - Centre de Convencions Internacional de Barcelona »

Plaça de Willy Brandt 11-14
08019 Barcelona, Spain

"Assessing prognosis of neuroendocrine neoplasms: Results of a collabora;ve mul;na;onal effort including over 10.000 European pa;ents - The ENETS registry."

Ivan Borbath, Damir Bikmukhametov, Sebas5an Maasberg, Rocio Garcia-Carbonero, Paula Jiménez-Fonseca, Angel Castaño, AEla Kollar, Eva Sedlačkova, Jaroslava Barkmanova, Beata Kos-Kudla, Daria Handkiewicz-Junak, Gregory Kaltsas, Anna Koumarianou, Massimo Falconi, Kjell E. Öberg, Bertram Wiedenmann, Holger Franz, Ruediger Lohmann, Ulrich-Frank Pape, Chris Verslype

Presentation of the poster at the ASCO 2018