Neuroendocrine Cancer Patient Experience Survey Abstract #1319

Introduction: Annually a national patient cancer survey (NCPES) is performed to assess perceived patient care. It was noted that in the previous cancer experience surveys patients with NET had not been invited to participate. The NET Patient Foundation (NETPF) commissioned Quality Health to undertake this survey in patients with a known diagnosis of neuroendocrine cancer. The patients were identified via NET centres of excellence around England.
Aim(s): To assess perceived level of patient care in 8 areas:initial diagnosis and referral, communication, information, treatment,CNS,support and overall NHS care.
Materials and methods: Study population were adults with a confirmed diagnosis of neuroendocrine cancer between August 2011 to July 2014. The questionnaire was adapted from the NCPES 2014 questionnaire and underwent a process of cognitive testing. Send out undertaken between January to September 2015 The send out followed the same methodology as the CPES
Conference: 13th Annual ENETS conference 2016 (2016)
Category: Epidemiology/Natural history/Prognosis - Registries, nationwide and regional surveys
Presenting Author: Catherine Bouvier

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