On-going Evaluation of The Clinical Utility of the Health-Related Quality-Of-Life (HRQoL) QLQ-GINET21 Questionnaire (QNR) in the Treatment of Patients (pts) with Gastrointestinal (GI) Neuroendocrine Tumours (NETs). QUALINETS Study

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Introduction: Outcome measures reported by pts help to weigh benefit/effect of a therapy on quality of life (QoL), provided that their utility in clinical practice is proved. There are few QoL QNRs for pts with NETs, like QLQ-GINET21, with 21 items assessing muscle/bone pain, body image, information, sexual function, symptoms, social function and disease-related concerns.

Aim(s): QUALINETS study aims to assess QLQ-GINET21 utility in making clinical and therapeutic decisions in routine clinical practice.

Materials and methods: QUALINETS is a non-interventional, cross-sectional, multicenter study, currently conducted in routine clinical practice by 37 specialists from outpatient clinics at Spanish and Portuguese public hospitals. Pts must be 18 years or older, have diagnosis of GI-NETs, and complete QLQ-C30 and QLQ-GINET21 QNRs.

Conference: 14th Annual ENETSConcerence (2017)

Presenting Author: Gallego J

Authors: Gallego J, Benavent M, Reig �, Sastre J, Díaz-Pabón I,

Keywords: neuroendocrine tumors, QoL, QLQ-GINET21, utility,