Remote Tracking of Symptoms, QoL and Wellbeing within the New Wales NET Service Abstract #2130

Introduction: Patients with NETs have worse health-related quality of life (HRQoL) than the general population. Technological advances have significantly increased electronic patient-reported outcome (ePRO) data collection capabilities. There is little longitudinal PRO/ePRO data and limited data on gastrointestinal symptoms, particularly ‘diarrhoea’, in NET patients.
Aim(s): Obtain longitudinal ePRO data via the CABARET app.
Materials and methods: 12 NET patients were given a tablet installed with the app. Using the app patients recorded bowel movements according to Bristol Stool Chart (BSC), completed a weekly gastrointestinal (GI) symptom survey and an EORTC QLQ-GINET21 survey every 2 weeks. Data inputted to the app was accessible to clinicians via a secure method linked to hospital records. 5 months of user input was analysed. App usability was evaluated via a patient questionnaire.
Conference: 15th Annual ENETS conference (2018)
Category: Epidemiology/Natural history/Prognosis- Registries, nationwide and regional surveys
Presenting Author: Mark Reynolds

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