Revalidation of QLQC30 and GINET21 Module in Patients with Neuroendocrine Tumors Using Online Questionnaire

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Introduction: The GINET21 module measures PROMS for patients with NETs and was validated from 2006, since when there have been rapid changes in cancer therapeutics. Current module revalidation methodology a time and resource-intensive process, which may lag behind these treatment

Aim(s): Online questionnaires may be an efficient method of achieving similar results in a shorter time-frame.

Materials and methods: 205 participants completed an online questionnaire between October 2013 and February 2014. Patients were asked to gauge the relevance of all QLQ C30 and GINET21 questions on a Likert scale of 1 to 4, and to complete 3 free text questions inviting them to raise issues not explored by the QLQ C30 and GINET21.Questions were assigned a mean relevance score (s), and ranked by relevance

Conference: 12th Annual ENETSConcerence (2015)

Presenting Author:

Authors: Kaupp-Roberts S, Gray D, O'Donnell K, Bouvier C, Ramage J,

Keywords: QoL PROM,