Introduction: The diagnosis of neuroendocrine tumors (NET) is often delayed due to the vague symptoms and rareness of the disease.
Aim(s): To investigate the association of delay in diagnosis and stage, grade, symptoms, primary site of the tumor and survival in patients with low-grade NET.
Materials and methods: We collected data of 216 patients who were referred to the NKI-AVL between 2003 and 2009. The start date and nature of the first symptoms, the first referral to a specialist and the date of NET diagnosis were reported in order to calculate two types of delay: patient (first symptoms to first referral to the specialist) and total delay (first symptoms to diagnosis). Linear regression analyses and Kaplan-Meier curves were performed to examine the association between patients characteristics, delays and survival.
Conference: 10th Annual ENETS Conference 2013 (2013)
Category: Epidemiology/Natural history/Prognosis - Descriptive epidemiology
Presenting Author: Dr Catharina M Korse
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