The Patient Journey – Experience from Symptoms to Diagnosis among Patients with Small Intestinal Neuroendocrine Tumours (SINET)

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Introduction: Patients with SINET often have diffuse symptoms delaying diagnosis. In a patient survey it was observed that 1/3 of NET patients had a time span to diagnosis of > 5 years, with a median of 52 months. Here we assess the patients’ experience during that time period.

Aim(s): To analyse the SINET patients’ experience during their journey from first symptom to diagnosis, objectively assess the time span and identify factors impacting this interval.

Materials and methods: Patients diagnosed with SINET during 2016-17 in western Sweden were involved in semi-structured interviews where data were analysed by clustering in a KJ-analysis. Medical records were analysed to collect time points and visits.

Conference: 17th Annual ENETSConcerence (2020)

Presenting Author: Holgersson K

Authors: Holgersson K, Ståhl E, Nilsson M, Grauers B, Mårtensson-Djäken E,

Keywords: SINET, patients' experience, interview,