ENETS has set up a European multi-national registry for patients with neuroendocrine tumours (NET) under the name of ENETS European NET Registry to enhance and foster multicentre, multinational investigations to collect and deliver information on the efficacy and safety of diagnostic and therapeutic strategies to care for or treat NET and to scientifically investigate the epidemiology of NET.
Registry encompasses through a NET database an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes that serves one or more predetermined scientific, clinical, or policy purposes.
In addition, the Registry documents and analyses the quality of care, the differences in care related to various European Health Care Systems, and the effect of different therapeutic strategies on the long term outcome of NET.
The Registry aims at improving the documentation of the disease, developing a quality-management system for the diagnosis and therapy of NET.
If your country has already her own NET database, a transfer of the data into the ENETS registry is possible.
In case your country does not have a registry, the ENETS registry offers the possibility to perform direct entry. In this case, you will have access to your own national patients and data.