Web-Based Tailored Information and Support for Patients with a Neuroendocrine Tumor Abstract #881

Introduction: Patients with neuroendocrine tumors (NET) frequently experience physical and psychosocial complaints. Optimal patient information can form an essential aspect of supportive care. To give NET patients continuous access to information, we developed a web-based tailored information and support system.
Aim(s): To detect whether this web-based system improves patients' perception and satisfaction of received information.
Materials and methods: Newly diagnosed NET patients at the UMCG and MST are invited to participate in this randomized pilot study. During the 12-week study period, the control group (N=10) receives usual care while the experimental group (N=10) also gets access to the web-based system, which is adjusted for NET patients. Key features are self-screening of physical/psychosocial problems, patient education about reported problems and self-referral to professional health care. The EORTC QLQ-INFO25 questionnaire is used to examine the primary objective.
Conference: 11th Annual ENETS Conference 2014 (2014)
Category: ...none of the below
Presenting Author: MD Grietje Bouma

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