Patient information
ENETS listens to patients.
For patients with NETs, the key to optimal care is a strong, multidisciplinary medical team, reliable medical information, and a robust support network.
At ENETS, we connect experts in NET care and research, including clinicians, specialised NET nurses, and representatives from patient advocacy organisations. Together, these professionals collaborate to improve the care and outcomes for patients living with NET diseases.
Collaboration
International Neuroendocrine Cancer Alliance (INCA)
The International Neuroendocrine Cancer Alliance (INCA) is a global network of patient organisations dedicated to improving the lives of individuals affected by Neuroendocrine Tumours (NETs). Through its advocacy, INCA works to raise awareness, provide education, and support the global NET community.
ENETS collaborates closely with INCA, engaging in regular exchanges and joint initiatives to advance NET care and support patients. For example, ENETS and INCA host joint sessions during the annual ENETS conferences, bringing together experts, healthcare professionals, and patient advocates to share knowledge and insights. In honour of NET Cancer Day on 11 December, ENETS and INCA traditionally host a joint educational webinar to raise awareness and provide valuable information for patients and their families.
INCA Initiatives
Think NENs
The #ThinkNENs campaign, led by INCA and supported by ENETS, educates primary care physicians on recognising and managing neuroendocrine cancers (NENs). This initiative aims to improve early diagnosis, ensuring patients receive the right treatment sooner for better outcomes.
Global NET Information Packs
ENETS supports INCA’s mission to meet the global need for reliable and accessible information on NETs. In 2020, ENETS and INCA collaborated to create comprehensive, easy-to-understand information packs on NETs, ensuring that patients and their families have access to clear, empowering resources. The INCA website provides access to free to download factsheets on neuroendocrine tumours in 11 languages.
ENETS Centers of Excellence (CoEs)
If you are looking for ENETS Centers of Excellence (CoE) in your region, please visit our CoE pages.