Patient information
ENETS listens to patients.
For patients with NETs, the key to optimal care is a strong, multidisciplinary medical team, reliable medical information, and a robust support network.
At ENETS, we connect experts in NET care and research, including clinicians, specialised NET nurses, and representatives from patient advocacy organisations. Together, these professionals collaborate to improve the care and outcomes for patients living with NET diseases.
Collaboration
International Neuroendocrine Cancer Alliance (INCA)
The International Neuroendocrine Cancer Alliance (INCA) is a global network of patient organisations dedicated to improving the lives of individuals affected by Neuroendocrine Tumours (NETs). Through its advocacy, INCA works to raise awareness, provide education, and support the global NET community.
ENETS collaborates closely with INCA, engaging in regular exchanges and joint initiatives to advance NET care and support patients. For example, ENETS and INCA host joint sessions during the annual ENETS conferences, bringing together experts, healthcare professionals, and patient advocates to share knowledge and insights. In honour of NET Cancer Day on 11 December, ENETS and INCA traditionally host a joint educational webinar to raise awareness and provide valuable information for patients and their families.
Furthermore, ENETS supports INCA’s mission to meet the global need for reliable and accessible information on NETs. In 2020, ENETS and INCA collaborated to create comprehensive, easy-to-understand information packs on NETs, ensuring that patients and their families have access to clear, empowering resources.
You can explore these information packs on the INCA website: Global NET Patient Information Pack
If you’re looking for national or regional patient support groups, be sure to visit the INCA website for more resources and connections.
If you are looking for a national or regional patient support group, please also visit the INCA website.
ENETS CoEs
If you are looking for ENETS Centers of Excellence (CoE) in your region, please visit our CoE pages.