Scientific Database projects

ENETS Database projects enable collaborative research across the ENETS network, supporting studies that utilise existing datasets as well as projects requiring specialised data collection.
Explore current projects across Levels I, II, and III and learn how new study proposals can be initiated within the ENETS Database framework.

Level I-II Projects

Level I and II database studies address scientific questions that can be answered by the existing database.

Eligibility

  • Continuous and significant database contribution is the key
  • A study proposal with synopsis and publication concept is always required
  • Call for participation sent by ENETS to each centre
  •  

Fees

  • Feasibility evaluations of ENETS DB level I – no fee will be charged
  • Studies and queries of ENETS DB level II by data reporter:
    • No fee will be charged if the data reporter query can be completed by authorised ENETS staff
    • If KKS or other external support is required, a fee will be charged/a budget must be set up.

Ongoing Level I-II Studies

AdobeStock 390023932 VIPoma

Retrospective VIPoma

AdobeStock 494002269

Retrospective observational study on patients with advanced HG GEP-NEN

AdobeStock 549522954

Atypical bronchial carcinoid (ABC): recurrence-free survival after resection and analysis of therapeutic interventions

AdobeStock 61584499

Retrospective study on loco-regional digestive neuroendocrine carcinoma

Level III Projects

Level III database studies address scientific questions which cannot answered by the existing database. These require extra programming.

Eligibility

  • Authorised ENETS task forces and Centres of Excellence DB participants
  • A study synopsis and proposal including publication policy is required
  • A separate ethic committee approval might be necessary/must be determined
  • Funding must be secured
  • Proposals will be evaluated in the spirit of goodwill by the DB review and support board
  • Call for participation and agreement to participate sent by ENETS to each center
  • Separate contract with KKS is necessary

Ongoing Level III studies

AdobeStock 542352789 CHD level 3

Multi-parametric risk assessment of patients with Carcinoid Heart Disease - A project of the ENETS CHD Task Force

AdobeStock 531990320 Lung NET Level 3

Real world retrospective study of therapies in lung and thymic carcinoids - A study of the ENETS Lung Task Force