Participation

This page provides an overview of who can participate in the ENETS NET Database, the applicable participation rules, and practical information on how to join and receive support.

Eligible centres

Participation in the ENETS NET Database is open to specialised neuroendocrine neoplasm (NEN) referral centres that meet defined eligibility criteria.

Centres within Europe

The following categories of expert centres within Europe are eligible to participate:

  • ENETS Centers of Excellence (CoEs)
    NEN referral centres accredited by ENETS as Centers of Excellence.
  • Other NEN referral centres, including:
    • ERN EURACAN-accredited centres
    • Centres accredited or recognised as expert centres by national authorities

Institutions that are not part of the ENETS Center of Excellence network, not ERN EURACAN-accredited, and not nationally accredited or recognised may apply to participate via an individual approval process.

Such institutions are required to complete the ENETS DB eligibility checklist and submit their request to the ENETS DB Core Group for review and approval. The checklist can be downloaded below.

Download:

Centres outside Europe

The ENETS NET Database is also open to selected non-European NEN referral centres, which may be invited to participate in ENETS-approved database studies, subject to specific eligibility and governance requirements (see Participation rules below).

Participation rules

General requirements (all centres)

All participating centres must:

  • Have a valid collaboration contract / data sharing agreement with ENETS
  • Obtain appropriate ethics committee or institutional review board (IRB) approval, in accordance with local regulations
  • Ensure compliance with the General Data Protection Regulation (GDPR) and applicable national data protection laws
  • Commit to accurate, complete and timely data entry
  • Adhere to ENETS quality standards and governance procedures

Additional regulations for non-European centres

In addition to the general requirements, the following rules apply to centres located outside Europe:

  • Must be an established NEN referral centre
  • Must have authored or co-authored peer-reviewed publications in the field of neuroendocrine neoplasms
  • Must agree to ENETS publication rules and quality control procedures
  • Participation requires a formal invitation from the Principal Investigator (PI) of the respective ENETS DB study
  • Centres are expected to contribute a meaningful number of patients
  • Non-European centres cannot act as Principal Investigators for ENETS DB-based studies
  • Patient entry is limited to ENETS-approved database studies
  • Participation must be approved by the ENETS DB Core Group
  • The responsible collaborating investigator must be an ENETS member

Authorship and publication principles

Scientific output arising from the ENETS NET Database follows transparent and fair authorship principles.

  • Authorship is based on meaningful scientific contribution, including data provision and study involvement
  • Publication models are defined at study level and communicated in advance
  • ENETS publication rules apply to all participating centres

Detailed authorship and publication principles are outlined in the ENETS NET Database Terms of Reference.

How to join

Centres interested in participating in the ENETS NET Database are invited to contact the ENETS Office at office@enets.org.

The participation process typically includes:

  1. Initial contact and eligibility assessment
  2. Submission of required documentation
  3. Contracting and ethics approval
  4. Study-specific approval (where applicable)
  5. User account setup and onboarding

The ENETS Office will support applicants throughout the evaluation process.