Illness Perceptions, Risk Perception and Worry in Patients with Inherited Paragangliomas

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Introduction: Carriers of germline mutations in subunits B and D of the succinate dehydrogenase (SDH) gene are at risk for developing paragangliomas (PGLs). The way a person perceives this risk and worries about it may be influenced by his or her perceptions about PGLs.

Aim(s): To explore illness perceptions in SDH-mutation carriers and their correlations with risk perception and disease-related worry.

Materials and methods: Illness perceptions were assessed using the validated Illness Perception Questionnaire-Revised and compared to those of several reference populations. Risk perception and worry were measured by two items each and associations with illness perceptions were explored.

Conference: 10th Annual ENETSConcerence (2013)

Presenting Author:

Authors: Van Hulsteijn L, Kaptein A, Louisse A, Biermasz N, Smit J,

Keywords: illness perceptions, risk perception, worry, paragangliomas, SDH mutation ,