Abstract Library

Welcome to the open-access search for all ENETS abstracts presented at the Annual ENETS Conferences.

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ENETS Abstract Search

#1858 Quality of Life in Patients with Multiple Endocrine Neoplasia Type I (MEN1): Results from the Dutch MEN1 Study Group

Introduction: Multiple Endocrine neoplasia type 1 (MEN1) is a hereditary tumor syndrome, characterized by an increased lifetime risk of benign and malignant endocrine tumors in various organs. Data on quality of life (QoL) in patients with MEN1 are scarce, whereas QoL is considered an important treatment outcome.

Conference: 14th Annual ENETSConcerence (2017)

Presenting Author: Van Leeuwaarde R

Authors: Van Leeuwaarde R, Beijers H, de Herder W, Dekkers O, Van der Horst-Schrivers A,

Keywords: MEN1, QoL,

#636 Illness Perceptions, Risk Perception and Worry in Patients with Inherited Paragangliomas

Introduction: Carriers of germline mutations in subunits B and D of the succinate dehydrogenase (SDH) gene are at risk for developing paragangliomas (PGLs). The way a person perceives this risk and worries about it may be influenced by his or her perceptions about PGLs.

Conference: 10th Annual ENETSConcerence (2013)

Presenting Author:

Authors: Van Hulsteijn L, Kaptein A, Louisse A, Biermasz N, Smit J,

Keywords: illness perceptions, risk perception, worry, paragangliomas, SDH mutation ,