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Quality of Life in Patients with Multiple Endocrine Neoplasia Type I (MEN1): Results from the Dutch MEN1 Study Group


Introduction: Multiple Endocrine neoplasia type 1 (MEN1) is a hereditary tumor syndrome, characterized by an increased lifetime risk of benign and malignant endocrine tumors in various organs. Data on quality of life (QoL) in patients with MEN1 are scarce, whereas QoL is considered an important treatment outcome.

Aim(s): The primary aim was to evaluate the presence of MEN1-related fear for disease occurrence in MEN1 patients. The secondary aim was to assess the impact of MEN1 on health related QoL (HRQoL) and to identify variables that were significantly related to reduced QoL and cancer worry.

Materials and methods: A cross-sectional study was performed in which MEN1 patients completed the Short-Form 36 Health Related QoL and the Cancer Worry Scale.

Conference: 14th Annual ENETSConcerence (2017)

Presenting Author: Van Leeuwaarde R

Authors: Van Leeuwaarde R, Beijers H, de Herder W, Dekkers O, Van der Horst-Schrivers A,

Keywords: MEN1, QoL,

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