National Cancer Intelligence Network Data for NET in England- Accuracy by Comparison to a Large Clinical Database

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Introduction: Data on all cancers is collected centrally for England using ICD-O-3 coding and it is entered into the National Cancer Intelligence Network (NCIN) database. Every pathology report is collected together with laboratory, radiology, admission episodes, clinic review, survival together with demographics.

Aim(s): The NCIN database was used to extract data on NET for England for the years of 2013/2014, to assess survival and to validate the data by comparing to a large clinical database.

Materials and methods: Data on pathological morphology together with site of disease were extracted from an agreed code list for 2013-14 which are the first years to use the OCD-O-3 coding. Data on one-year survival and stage was extracted.A clinical database from was used to extract patients diagnosed for the same years of interest and this was then linked to the NCIN data.

Conference: 14th Annual ENETSConcerence (2017)

Presenting Author: Ramage J

Authors: Ramage J, Rous B, Sissons M, Talbot D, Reed N,

Keywords: registry, incidence, mortality,