Abstract Library

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ENETS Abstract Search

#1652 National Cancer Intelligence Network Data for NET in England- Accuracy by Comparison to a Large Clinical Database

Introduction: Data on all cancers is collected centrally for England using ICD-O-3 coding and it is entered into the National Cancer Intelligence Network (NCIN) database. Every pathology report is collected together with laboratory, radiology, admission episodes, clinic review, survival together with demographics.

Conference: 14th Annual ENETSConcerence (2017)

Presenting Author: Ramage J

Authors: Ramage J, Rous B, Sissons M, Talbot D, Reed N,

Keywords: registry, incidence, mortality,

#1331 The Symptoms Experienced by Small Bowel and Pancreatic NET Patients Prior to Diagnosis Do Not Meet the Criteria for a Functional Diarrhoea (IBS-D) Diagnosis

Introduction: Patients with neuroendocrine tumours (NETs) complain of symptoms that may be mistaken for irritable bowel syndrome (IBS). There is no clear data if these symptoms overlap with those of IBS or if differentiating symptoms co-exist.

Conference: 13th Annual ENETSConcerence (2016)

Presenting Author:

Authors: Basuroy R, Bouvier C, Sissons M, Ramage J, Srirajaskanthan R,

Keywords: IBS, NET, functional diarrhoea,

#1319 Neuroendocrine Cancer Patient Experience Survey

Introduction: Annually a national patient cancer survey (NCPES) is performed to assess perceived patient care. It was noted that in the previous cancer experience surveys patients with NET had not been invited to participate. The NET Patient Foundation (NETPF) commissioned Quality Health to undertake this survey in patients with a known diagnosis of neuroendocrine cancer. The patients were identified via NET centres of excellence around England.

Conference: 13th Annual ENETSConcerence (2016)

Presenting Author: Srirajaskanthan R

Authors: Bouvier C, Sissons M, Srirajaskanthan R,

Keywords: Diagnosis and referral, communication, information, explanation, treatment, CNS, support,

#1231 Neuroendocrine Tumor (NET) Patient (pt) Experience and Disease Burden: Results from the First Global NET Pt Survey - A Collaboration Between the International Neuroendocrine Cancer Alliance (INCA) and Novartis Pharmaceuticals

Introduction: Global data on impact of NETs on pts’ lives, including differences by disease location, are poorly described. We present global data on pt experience and disease burden by NET type.

Conference: 12th Annual ENETSConcerence (2015)

Presenting Author:

Authors: Ruszniewski P, Yao J, Kolarova T, Goldstein G, Sissons M,

Keywords: Symptom burden,

#1220 Time to Diagnosis of Neuroendocrine Tumors (NETs): Results from the First Global NET Patient (pt) Survey - A Collaboration Between the International Neuroendocrine Cancer Alliance (INCA) and Novartis Pharmaceuticals

Introduction: Diagnosis of NETs often occurs late in the disease course, which may have an impact on pt survival. We present pt-reported data on time to diagnosis in global NET pts.

Conference: 12th Annual ENETSConcerence (2015)

Presenting Author:

Authors: Pavel M, Goldstein G, Sissons M, Kolarova T, Leyden J,

Keywords: Diagnosis,