Abstract Library

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#1231 Neuroendocrine Tumor (NET) Patient (pt) Experience and Disease Burden: Results from the First Global NET Pt Survey - A Collaboration Between the International Neuroendocrine Cancer Alliance (INCA) and Novartis Pharmaceuticals

Introduction: Global data on impact of NETs on pts’ lives, including differences by disease location, are poorly described. We present global data on pt experience and disease burden by NET type.

Conference: 12th Annual ENETSConcerence (2015)

Presenting Author:

Authors: Ruszniewski P, Yao J, Kolarova T, Goldstein G, Sissons M,

Keywords: Symptom burden,

#1220 Time to Diagnosis of Neuroendocrine Tumors (NETs): Results from the First Global NET Patient (pt) Survey - A Collaboration Between the International Neuroendocrine Cancer Alliance (INCA) and Novartis Pharmaceuticals

Introduction: Diagnosis of NETs often occurs late in the disease course, which may have an impact on pt survival. We present pt-reported data on time to diagnosis in global NET pts.

Conference: 12th Annual ENETSConcerence (2015)

Presenting Author:

Authors: Pavel M, Goldstein G, Sissons M, Kolarova T, Leyden J,

Keywords: Diagnosis,

#1217 The Neuroendocrine Tumor (NET) Patient (pt) Perspective: Results from the First Global NET Pt Survey - A Collaboration Between the International Neuroendocrine Cancer Alliance (INCA) and Novartis Pharmaceuticals

Introduction: Despite a rising incidence of NETs, few studies document the NET pt experience. We present data on quality of life (QoL) and the global NET pt perspective.

Conference: 12th Annual ENETSConcerence (2015)

Presenting Author:

Authors: Leyden J, Sissons M, Goldstein G, Kolarova T, Bouvier C,

Keywords: Quality of life,

#1208 Multidisciplinary Team (MDT) in Neuroendocrine Tumor (NET) Management: Results from the First Global NET Patient (pt) Survey - A Collaboration Between the International Neuroendocrine Cancer Alliance (INCA) and Novartis Pharmaceuticals

Introduction: Guidelines support an MDT approach to NETs. We present data on the global NET pt perspective regarding MDT care.

Conference: 12th Annual ENETSConcerence (2015)

Presenting Author:

Authors: Öberg K, Leyden J, Sissons M, Kolarova T, Goldstein G,

Keywords: Multidisciplinary team,