Improving understanding of neuroendocrine tumors (NETs) – A key to improving patient outcomes

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Introduction: The International Neuroendocrine Cancer Alliance (INCA) is a global umbrella organization advocating on behalf of neuroendocrine patients to improve time to diagnosis, care and research.

Aim(s): Raising awareness of the impacts of delayed diagnosis and misdiagnoses in NETs is a key focus for INCA and the global neuroendocrine cancer community.

Materials and methods: To focus on reducing time to diagnosis, INCA launched 2 campaigns: A concerted communication effort around late diagnosis and misdiagnosis among patients, carers, healthcare professionals and the general public: Neuroendocrine Cancer Day campaign ‘Know the symptoms. Push for diagnosis’ in 10 languages, and an educational program targeting primary healthcare professionals (HCPs).

Conference:

Presenting Author: McDonnell M

Authors: McDonnell M, Kolarova T, van Genechten D, Gellerman E, Dureja S,

Keywords: neuroendocrine, awareness, education, improve, outcome, global,