Abstract Library
Welcome to the open-access search for all ENETS abstracts presented at the Annual ENETS Conferences.
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ENETS Abstract Search
Introduction: Health-related quality of life (HRQL) and supportive care needs (SCN) of patients with gastroenteropancreatic neuroendocrine tumours (GEP-NET) remain understudied. Assessing and identifying the affected domains of HRQL and SCN of the patients with GEP-NET is part of the nursing practice and may contribute to adapt the nursing care.
Conference:
Presenting Author: Ho J
Authors: Ho J, Abdulle A, Messerli O, Eicher M, Schaefer N,
Keywords: gastroenteropancreatic neuroendocrine tumour, health related quality of life, quality of life, supportive care needs, unmet needs,
Introduction: Patients (pts) with von Hippel-Lindau (VHL) disease need novel targeted therapies. Hypoxia-inducible factor 2α (HIF-2α) is a key oncogenic driver in VHL disease. Belzutifan (MK-6482), a HIF-2α inhibitor, has shown antitumor activity in pts with advanced renal cell carcinoma (RCC) and pancreatic neuroendocrine tumors (pNETs); more data are needed in VHL disease–associated localized tumors.
Conference:
Presenting Author:
Authors: Walter T, Gong K, Nakamura E, Iliopoulos O, Jimenez C,
Keywords: von Hippel-Lindau disease, belzutifan, MK-6482,
Introduction: Patient Initiated Follow Up (PIFU) is well established in this regional cancer centre, it allows patients to contact a cancer specialist team based on symptoms and individual circumstances. Patients are empowered to manage follow-up remotely, undertaking cancer surveillance tests and accessing results through the digital system MyMedicalRecord (MyMR).
Conference:
Presenting Author:
Authors: Ramsey E, Marsh C, Jarvis E, Armstrong T, Knight J,
Keywords: surveillance, Patient-initiated follow-up, neuroendocrine tumor, follow-up,
Introduction: Liver transplantation [LT] for unresectable neuroendocrine tumor liver metastases [NET LM] is one of three new cancer indications in UK and Ireland. Transplant benefit is only proven using the Milan criteria so patient selection needs to be meticulously objective. We have therefore created a national MDT to provide a formal framework, aid patient selection, oversee data collection, monitor performance, provide training and education, deliver equity of access, facilitate research and clinical trials.
Conference:
Presenting Author:
Authors: Shah T, Gibbs P, Moore J, Venkataraman H, O'Toole D,
Keywords: liver transplantation, neuroendocrine tumor liver metastasis, neuroendocrine tumor surgery,
Introduction: The diagnosis of carcinoid heart disease (CHD) is often made late and requires a highly experienced team to manage multiple issues, such as heart failure, carcinoid symptoms and poor nutrition. Prior to December 2018 NET (Neuroendocrine Tumor) and cardiac teams were working in isolation, this resulted in missed opportunities for intervention and comprehensive review. It was evident we needed to build closer collaborations with our cardiac colleagues, to ensure timely assessment, optimisation of symptoms and improve patients’ overall experience. The Clinical Nurse Specialists (CNSs) were fundamental in establishing a twice monthly CHD/NET multidisciplinary team meeting and monthly joint NET/CHD clinic. Patients were kept informed at each stage by the CNS, either during telephone consultation, ward visit or at clinic appointments.
Conference:
Presenting Author:
Authors: Smith S, Vickrage S, Kemp-Blake J, Coldham C, Shah T,
Keywords: Carcinoid Heart Disease, Multidisciplinary team, Clinical Nurse Specialist,