Abstract Library

#2751 Cross-Sectional Study Assessing the Feasibility of Using NET VITALS Communication Tool among Patients with Neuroendocrine Tumors

Introduction: Neuroendocrine tumor (NET) patients have reported ineffective communication with medical providers as a barrier to quality care.

Conference: 17th Annual ENETSConcerence (2020)

Presenting Author: Li D

Authors: Li D, Imbesi G, Yen L, Kim H, Sun C,

Keywords: neuroendocrine tumor, communication, doctor-patient relationship,

#2697 Telephonic Communication in Palliative Care for Better Management of Terminal Cancer Patients in Rural India - A NGO Based Approach

Introduction: Due to financial incapability and absence of manpower poor families often fail to carry their advanced cancer patients to the nodal centres.

Conference: 17th Annual ENETSConcerence (2020)

Presenting Author:

Authors: Mandal N,

Keywords: cancer,

#2146 Clinical Utility (CU) Evaluation of the Health-Related Quality-of-Life (HRQoL) QLQ-GINET21 Questionnaire (QNR) in the Treatment of Patients (pts) with Gastrointestinal (GI) Neuroendocrine Tumors (NETs). QUALINETS Study

Introduction: QLQ-GINET21 for pts with GI-NETs covers muscle/bone pain, body image, information, sexual function, symptoms, social function and disease-related concerns.

Conference: 15th Annual ENETSConcerence (2018)

Presenting Author:

Authors: Gallego J, Reig O, Sastre J, Garcia I, Segura A,

Keywords: neuroendocrine tumors, Quality of Life, QLQ-GINET21, utility,

#1345 To Evaluate How the Outcome of Neuroendocrine Tumour (NET) Multidisciplinary Team (MDT) Meeting Decisions Are Conveyed to Patients at a ENETS Centre of Excellence (The Christie) and How This Service Can Be Further Improved

Introduction: It is recommended that people with cancer should be managed by an MDT and the outcomes should be communicated in a “timely manner”. However, it does not specify when this should be done, or by whom.

Conference: 13th Annual ENETSConcerence (2016)

Presenting Author: Rigby C

Authors: Rigby C, Mansoor W, Valle J, Hubner R, McNamara M,

Keywords: Patient communication MDT,

#1319 Neuroendocrine Cancer Patient Experience Survey

Introduction: Annually a national patient cancer survey (NCPES) is performed to assess perceived patient care. It was noted that in the previous cancer experience surveys patients with NET had not been invited to participate. The NET Patient Foundation (NETPF) commissioned Quality Health to undertake this survey in patients with a known diagnosis of neuroendocrine cancer. The patients were identified via NET centres of excellence around England.

Conference: 13th Annual ENETSConcerence (2016)

Presenting Author: Srirajaskanthan R

Authors: Bouvier C, Sissons M, Srirajaskanthan R,

Keywords: Diagnosis and referral, communication, information, explanation, treatment, CNS, support,