Abstract Library

#3648 Treatment preferences for somatostatin analogues in neuroendocrine tumors (NETs) among patients, clinicians and nurses in Australia

Introduction: Long-acting somatostatin analogues (LA SSAs) are commonly used as first-line treatment in low-grade pancreatic or midgut neuroendocrine tumors (NETs). Due to the long-term nature of treatment, treatment preferences should be taken into consideration. Funding for this study was provided by Ipsen.

Conference:

Presenting Author:

Authors: Cummins M, Fifer S, Winkler K, Cherian H,

Keywords: Treatment preferences, LA SSAs, NET,

#3578 Optimal PLAnning of treatment and research of Neuroendocrine Tumors (NETs) in Australia: The PLANET registry and patient reported outcomes via PLANET App

Introduction: Neuroendocrine Neoplasms (NENs) are challenging to diagnose and manage due to their varied behaviour. Despite usually having an indolent course, they are often metastatic at diagnosis and can be associated with significant long-term morbidity and impaired quality-of-life (QOL). The PLANET registry was established to collate clinical data from tertiary NET centres and integrate these with real-time patient reported outcomes (PROs) enabled by the smartphone-based PLANET App.

Conference:

Presenting Author: Leyden S

Authors: Leyden S, Cummins M, Pavlakis N, Ransom D, Price T,

Keywords: data, PROMS, PROs, QOLs, real-world data,

#3340 Development and launch of first Australian accredited GP NET education course

Introduction: In 2018-19, NeuroEndocrine Cancer Australia (NECA) encouraged NET patients to nominate GP’s to fill in a 21-question survey. Questions ranged from diagnosis, initial symptoms, interactions with specialists, educational gaps & preferences. With only 5% of GPs suspecting a NET, these results provided the foundations for much needed education for GPs.

Conference: 18th Annual ENETS Concerence (2021)

Presenting Author: Cummins M

Authors: Cummins M, Leyden S,

Keywords: general practitioner, net education modules,

#3190 Getting Results - Patient experiences and preferences for communicating scan results in Australia

Introduction: Scans are integral to neuroendocrine tumor (NET) management. There are no guidelines regarding timing of scans and results communication from a patient (pt.) perspective.

Conference: 18th Annual ENETS Concerence (2021)

Presenting Author:

Authors: Gillespie J, Wakelin K, Cummins M, Golden K, Chan D,

Keywords: consumer, patient preferences, imaging, collaborative consumer research, communication, self-management, health service delivery,

#2901 Data is Power - Registry Experience at an ENETS COE

Introduction: The collection of anonymised data for patients with neuroendocrine tumours is necessary for the ongoing improvement of patient care and research/clinical trials.

Conference: 17th Annual ENETSConcerence (2020)

Presenting Author: Hogg A

Authors: Hogg A, Stell A, Marusic P, Sinnott R, Cummins M,

Keywords: PROMS, mobile phone app, registry,