Abstract Library

#2901 Data is Power - Registry Experience at an ENETS COE

Introduction: The collection of anonymised data for patients with neuroendocrine tumours is necessary for the ongoing improvement of patient care and research/clinical trials.

Conference: 17th Annual ENETSConcerence (2020)

Presenting Author: Hogg A

Authors: Hogg A, Stell A, Marusic P, Sinnott R, Cummins M,

Keywords: PROMS, mobile phone app, registry,

#1169 Revalidation of QLQC30 and GINET21 Module in Patients with Neuroendocrine Tumors Using Online Questionnaire

Introduction: The GINET21 module measures PROMS for patients with NETs and was validated from 2006, since when there have been rapid changes in cancer therapeutics. Current module revalidation methodology a time and resource-intensive process, which may lag behind these treatment

Conference: 12th Annual ENETSConcerence (2015)

Presenting Author:

Authors: Kaupp-Roberts S, Gray D, O'Donnell K, Bouvier C, Ramage J,

Keywords: QoL PROM,

#452 Clinical and Psychometric Validation of the Disease-Specific Questionnaire Module (EORTC QLQ-GINET21) in Assessing Quality of Life of Patients with Neuroendocrine Tumors

Introduction: Quality of life (QoL) is an important outcome measure in clinical trials and is increasingly being used as an endpoint. The QLQ-GINET21 is a questionnaire developed with the EORTC QoL Group but which had not previously been validated.

Conference: 9th Annual ENETSConcerence (2012)

Presenting Author:

Authors: Ramage J, Yadegarfar G, Friend L, Jones L, Plum L,

Keywords: Quality of Life, PROMS,