Development of a mobile app for patients with neuroendocrine neoplasms: A collaborative project between United Kingdom NET Society and Neuroendocrine Tumour Patient Foundation

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Introduction: Digital technology has an important role in the management of long term conditions.

Aim(s): The purpose of this study was to evaluate the feasibility of using PROMs to monitor symptoms, via a disease specific mobile application. Secondary endpoints included QoL and patient engagement, captured through a patient survey responses regarding mobile device use and app analytics.

Materials and methods: Patient needs were identified through workshops, hosted by NCUK. A steering group identified the clinical requirements, leading to the inclusion of demographics, therapies plus a symptom tracker and QoL questionnaires. The app includes links to educational + self management resources (NCUK). The app was hosted on the App store (for both Android and Apple devices) and available for download. Patients at 6 NETS centres were invited to participate in a formal study to assess patient utilisation. A CE-marked clinical portal was used by clinical teams to contact patients and accumulate data for research.

Conference:

Presenting Author: Srirajaskanthan R

Authors: Srirajaskanthan R, Alaghband N, Ramage J, Solis B, Virk J,

Keywords: PROMs, Mobile Health, Neuroendocrine Tumor, Charity, patient focussed, bespoke, QoL,