#4239
Implementation of a new, nurse-led clinic (NLC) for neuroendocrine tumor (NET) patients
Introduction:
There is international evidence supporting nurse-led services for people with chronic diseases in reducing hospitalisations, symptom improvement and lifestyle, and patient satisfaction. Patients with NET often have high symptoms burden and psychosocial distress in the context of indolent disease. Our centre recently implemented a (NLC) to provide complex care support for patients with NET.
Conference:
Presenting Author:
Authors:
Wakelin K,
Michael M,
Kong G,
Rogers M,
Natkunarajah N,
Keywords:
Nurse-led care,
Multidisciplinary care,
Supportive care,
Symptom management,
Patient support,
#3190
Getting Results - Patient experiences and preferences for communicating scan results in Australia
Introduction:
Scans are integral to neuroendocrine tumor (NET) management. There are no guidelines regarding timing of scans and results communication from a patient (pt.) perspective.
Conference:
18th Annual ENETS Concerence (2021)
Presenting Author:
Authors:
Gillespie J,
Wakelin K,
Cummins M,
Golden K,
Chan D,
Keywords:
consumer,
patient preferences,
imaging,
collaborative consumer research,
communication,
self-management,
health service delivery,
#2713
The Economic Impact to Patients with Neuroendocrine Tumours
Introduction:
The quality of life impact on patients with neuroendocrine tumours (NETs) and the economic burden on health systems are substantial. However, little is known about the economic burden to individual patients and families for medical out-of-pocket expenses and employment decisions.
Conference:
17th Annual ENETSConcerence (2020)
Presenting Author:
Wyld D
Authors:
Wyld D,
Elliott T,
Wakelin K,
Leyden S,
Leyden J,
Keywords:
Financial Toxicity,
Economic impact,
Quality of Life,
NETs,
#2701
Assessing the Gaps in Experience and Knowledge of Australian Primary Health Care Professionals (GPs), in Treating and Caring for the Increasing Number of Australian Neuroendocrine Tumour (NET) Patients
Introduction:
Conservatively,the incidence of NETs is 7 / 000' p.a, however,the prevalence of patients living with NETs is higher,40/000',making it the 2nd most common GI malignancy after colorectal cancer.Patients are living longer,however,with impaired quality of life.Management of debilitating symptoms such as diarrhoea,fatigue,anxiety,and flushing are complex and heterogenous.
Conference:
17th Annual ENETSConcerence (2020)
Presenting Author:
Leyden S
Authors:
Leyden S,
Cummins M,
Wakelin K,
Keywords:
diagnosis,
ongoing care,
primary healthcare,
NETs,
quality of life,
symptom management,
NET symptoms,
