14 years of the Czech Neuroendocrine Tumors Registry

#4012

Introduction: Czech Cooperative Group for NETs was established on 22 April 2008. It continues with the practices of the Czech Carcinoid Group founded 1998. The Czech Neuroendocrine Registry was started in 2009 as a platform that should facilitate the data based on communication among various specialists treating NETs.

Aim(s): Well-controlled registration of NET patients from the network of specialized centers. Enable use of parametric clinical records and their analyses for practice.

Materials and methods: Non-interventional, epidemiological, multicenter clinical registry with fully standardized clinical anonymous records, using electronic CRF, managed through on-line accessible forms with NET diagnosis. We have collected identification and demographic data, NET diagnosis details, biopsy details and TNM staging, clinical assessment data and a chronological list of therapies and status of condition.

Conference:

Presenting Author:

Authors: Barkmanova J, Sedlackova E,

Keywords: neuroendocrine registry, population-based system, neuroendocrine tumor (NET),