Abstract Library

#2824 Patient and Nurse Satisfaction with the New Lanreotide Autogel Pre-Filled Syringe in Neuroendocrine Tumors (NET): A Prospective Study (SONATE)

Introduction: A new syringe (NS) for the delivery of lanreotide autogel was approved in Oct 2018 in France. The NS includes updated features (larger flanges, more robust plunger) intended to ease the injection.

Conference: 17th Annual ENETSConcerence (2020)

Presenting Author:

Authors: Walter T, Eskenazi M, Rama N, Gueguen D, Mir O,

Keywords: neuroendocrine tumors, lanreotide, nursing, patient-reported outcomes,

#2178 Nutritional Status and Considerations for Patients Diagnosed with a Gastroenteropancreatic Neuroendocrine Tumor: Preliminary Baseline Characteristics from the Nutrition in NETs Study

Introduction: Gastroenteropancreatic neuroendocrine tumours (GEP NET) cause various symptoms impacting on nutritional status and diet. Published data indicates up to 25% of GEP NET patients are malnourished, and dietary change is prevalent. Further research is required to guide nutrition recommendations.

Conference: 15th Annual ENETSConcerence (2018)

Presenting Author: Kennedy E

Authors: Kennedy E, Kiss N, Michael M, Gough K, Drosdowsky A,

Keywords: nutrition, malnutrition, diet, neuroendocrine,

#2177 Assessment of Quality of Life in Chinese Patients with Gastroenteropancreatic Neuroendocrine Tumors

Introduction: Descriptive analysis on the QOL in patients(pts) with GEP-NET are rare.

Conference: 15th Annual ENETSConcerence (2018)

Presenting Author: Liu Q

Authors: Liu Q, Li Y, Qiu X, Li X, Dou D,

Keywords: quality of life, neuroendocrine tumors, patient-reported outcome,

#2130 Remote Tracking of Symptoms, QoL and Wellbeing within the New Wales NET Service

Introduction: Patients with NETs have worse health-related quality of life (HRQoL) than the general population. Technological advances have significantly increased electronic patient-reported outcome (ePRO) data collection capabilities. There is little longitudinal PRO/ePRO data and limited data on gastrointestinal symptoms, particularly ‘diarrhoea’, in NET patients.

Conference: 15th Annual ENETSConcerence (2018)

Presenting Author: Reynolds M

Authors: Reynolds M, Tucker L, Ankita B, Powell C, Hopps R,

Keywords: Quality of Life, Symptoms, ePRO, Diarrhoea, NET service, Longitudinal Data, CABARET, app,

#2090 Financial Toxicity in Patients with Neuroendocrine Tumor Disease. A so far Underestimated "Side Effect" of Cancer in Germany?

Introduction: Cancer is not only associated with physical and psychological, but also financial burden. In contrast to other countries, the socio-economic impact of cancer for patients in Germany, with a third party paid health care system, is poorly understood.

Conference: 15th Annual ENETSConcerence (2018)

Presenting Author:

Authors: Winkler E, Mehlis K, Kudlich M, Apostolidis L, Witte J,

Keywords: financial toxicity, economic burden, patient-reported outcome, distress, quality of life,