#2090
Financial Toxicity in Patients with Neuroendocrine Tumor Disease. A so far Underestimated "Side Effect" of Cancer in Germany?
Introduction:
Cancer is not only associated with physical and psychological, but also financial burden. In contrast to other countries, the socio-economic impact of cancer for patients in Germany, with a third party paid health care system, is poorly understood.
Conference:
15th Annual ENETSConcerence (2018)
Presenting Author:
Authors:
Winkler E,
Mehlis K,
Kudlich M,
Apostolidis L,
Witte J,
Keywords:
financial toxicity,
economic burden,
patient-reported outcome,
distress,
quality of life,
#2078
Self-Reported Side Effects in Neuroendocrine Tumor (NET) Patients Prescribed Somatostatin Analogues – The Role for Specialist Dietitians and Nurses
Introduction:
In practice, many patients with NETs report a change in symptoms after starting somatostatin analogues (SSA’s). Many health professionals and NET patient advocates have noticed that some of the side effects experienced by patients are more common than patient information literature suggests. It is therefore important to ask what and how severe experiences are, and compare to literature, to help raise awareness amongst NET health professionals.
Conference:
15th Annual ENETSConcerence (2018)
Presenting Author:
Authors:
Whyand T,
Davies P,
Bouvier C,
Keywords:
B12,
SSA,
Side effects,
Fat soluble vitamins,
#728
NETworking-The First Three Years of the World NET Cancer Awareness Day Alliance
Introduction:
Neuroendocrine tumors have an incidence of 3-5/100,000 per year, however, many patients are diagonosed late in their clinical course resulting in poor outcomes and early death. Raising awareness of the myriad presenting symptoms with resultant early diagnosis is a priority health care initiative for this disease. In 2010, the World NET Cancer Day Awareness (WNCAD) Alliance was formed with the primary mission to raise awareness of neuroendocrine tumors and promote November 10 as World NET Cancer Awareness Day
Conference:
10th Annual ENETSConcerence (2013)
Presenting Author:
Authors:
Leyden J,
Sissons M,
Goldstein G,
Keywords:
neuroendocrine,
advocacy,
internet,
facebook,
twitter,
social media,
