NETworking-The First Three Years of the World NET Cancer Awareness Day Alliance

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Introduction: Neuroendocrine tumors have an incidence of 3-5/100,000 per year, however, many patients are diagonosed late in their clinical course resulting in poor outcomes and early death. Raising awareness of the myriad presenting symptoms with resultant early diagnosis is a priority health care initiative for this disease. In 2010, the World NET Cancer Day Awareness (WNCAD) Alliance was formed with the primary mission to raise awareness of neuroendocrine tumors and promote November 10 as World NET Cancer Awareness Day

Aim(s): To promote awareness, education and advocacy of neuroendocrine tumors through the development of a global alliance - WNCAD.

Materials and methods: The WNCAD Alliance and its member groups have for the last three years promoted awareness of NET cancers locally and globally with the unifying motto - 'if you don't suspect it, you won't detect it'. The development of an Internet presence, an evolving social network profile, utilization of traditional media, resource sharing and global NET patient education has resulted in significant improvements in awareness of neuroendocrine tumours internationally.

Conference: 10th Annual ENETSConcerence (2013)

Presenting Author:

Authors: Leyden J, Sissons M, Goldstein G,

Keywords: neuroendocrine, advocacy, internet, facebook, twitter, social media,