Abstract Library

#4287 Challenges in access to peptide receptor radionuclide therapy (PRRT) in developing countries – Insights from patient advocacy perspective

Introduction: As patient advocates and advocacy groups emerge as pivotal players in promoting access to healthcare, we explore their role in promoting radionuclide therapy in NETs.

Conference:

Presenting Author: Dureja S

Authors: Dureja S,

Keywords: Neuroendocrine tumour, Patient Advocacy, PRRT, Theranostics, Developing countries,

#3791 Trends in neuroendocrine-related searches on Google – How famous cases impact on interest of general population

Introduction: General population interest in neuroendocrine tumors (NET) is influenced by mass-media news and awareness campaigns by advocacy and medical groups. Cases of NET in famous people greatly impact conversations about this disease.

Conference:

Presenting Author:

Authors: Hernando Cubero J, Garcia Alvarez A, Roca-Herrera M, Carmona Alonso A, Garcia Burillo A,

Keywords: Google, Trends, Famous,

#3137 Empowerment survey for patients with neuroendocrine tumors - A pilot study in Spanish population

Introduction: Quality of life is very important in patients with neuroendocrine tumors (NET), but other aspects such as satisfaction and empowerment of patients have been less studied. In Spain, there is a lack of validated cancer empowerment questionnaires.

Conference: 18th Annual ENETS Concerence (2021)

Presenting Author: Hernando J

Authors: Hernando J, Sampedro-Núñez M, Muñoz de Nova J, Triviño E, Vázquez G,

Keywords: empowerment, online survey, patient advocacy,

#2989 Different Social Media Neuroendocrine Tumor Indexing Strategies Used by Physicians and Advocacy Groups

Introduction: The use of Twitter to disseminate medical content has increased over the last decade. Although Twitter activity by oncologists is clustered around international conferences, advocacy groups have different temporal social media patterns. Furthermore, given the non-standardized method of indexing tweets using Twitter hashtags, it can be difficult to follow the full breadth of a topic.

Conference: 17th Annual ENETSConcerence (2020)

Presenting Author:

Authors: Meti N, Singh S,

Keywords: Neuroendocrine Tumor, Social Media, Twitter, Advocacy,

#2169 Patient and Clinician Perspectives on Symptom Priorities Across the Spectrum of Neuroendocrine Tumors (NETs)

Introduction: NETs are associated with a range of symptoms, and symptom reduction is a common treatment target. Identifying priority symptoms across NETs can help inform clinical trial endpoints.

Conference: 15th Annual ENETSConcerence (2018)

Presenting Author:

Authors: Kaiser K, Webster K, Shaunfield S, Greene G, Yount S,

Keywords: neuroendocrine tumors, priority symptoms, qualitative methods,