Abstract Library

#2989 Different Social Media Neuroendocrine Tumor Indexing Strategies Used by Physicians and Advocacy Groups

Introduction: The use of Twitter to disseminate medical content has increased over the last decade. Although Twitter activity by oncologists is clustered around international conferences, advocacy groups have different temporal social media patterns. Furthermore, given the non-standardized method of indexing tweets using Twitter hashtags, it can be difficult to follow the full breadth of a topic.

Conference: 17th Annual ENETSConcerence (2020)

Presenting Author:

Authors: Meti N, Singh S,

Keywords: Neuroendocrine Tumor, Social Media, Twitter, Advocacy,

#2169 Patient and Clinician Perspectives on Symptom Priorities Across the Spectrum of Neuroendocrine Tumors (NETs)

Introduction: NETs are associated with a range of symptoms, and symptom reduction is a common treatment target. Identifying priority symptoms across NETs can help inform clinical trial endpoints.

Conference: 15th Annual ENETSConcerence (2018)

Presenting Author:

Authors: Kaiser K, Webster K, Shaunfield S, Greene G, Yount S,

Keywords: neuroendocrine tumors, priority symptoms, qualitative methods,

#2078 Self-Reported Side Effects in Neuroendocrine Tumor (NET) Patients Prescribed Somatostatin Analogues – The Role for Specialist Dietitians and Nurses

Introduction: In practice, many patients with NETs report a change in symptoms after starting somatostatin analogues (SSA’s). Many health professionals and NET patient advocates have noticed that some of the side effects experienced by patients are more common than patient information literature suggests. It is therefore important to ask what and how severe experiences are, and compare to literature, to help raise awareness amongst NET health professionals.

Conference: 15th Annual ENETSConcerence (2018)

Presenting Author:

Authors: Whyand T, Davies P, Bouvier C,

Keywords: B12, SSA, Side effects, Fat soluble vitamins,

#2028 Education and Preparation for Nuclear Medicine Procedures in Neuroendocrine Tumor Patients

Introduction: In 2007, a coalition of health care organizations formed around the a unified goal of improving imaging safety and quality for adults (Image Wisely) and children (Image Gently). In 2008, the Society of Nuclear Medicine (SNMMI) joined this coalition, embracing its role in providing outreach to the patient community. The Society has created an annual patient program to reach patients and caregivers, and is continually seeking input from the patient community to improve the program and other online educational resources.

Conference: 15th Annual ENETSConcerence (2018)

Presenting Author: Mailman J

Authors: Mailman J, Budzinski L,

Keywords: Imaging, Nuclear Medicine,

#728 NETworking-The First Three Years of the World NET Cancer Awareness Day Alliance

Introduction: Neuroendocrine tumors have an incidence of 3-5/100,000 per year, however, many patients are diagonosed late in their clinical course resulting in poor outcomes and early death. Raising awareness of the myriad presenting symptoms with resultant early diagnosis is a priority health care initiative for this disease. In 2010, the World NET Cancer Day Awareness (WNCAD) Alliance was formed with the primary mission to raise awareness of neuroendocrine tumors and promote November 10 as World NET Cancer Awareness Day

Conference: 10th Annual ENETSConcerence (2013)

Presenting Author:

Authors: Leyden J, Sissons M, Goldstein G,

Keywords: neuroendocrine, advocacy, internet, facebook, twitter, social media,