Abstract Library

#4023 Empowering patients with neuroendocrine tumors through a mobile app: NETcare

Introduction: Patients with neuroendocrine tumors (NET) face unmet needs across various domains, encompassing treatment and symptom management. Addressing the diverse challenges requires a proactive multidisciplinary team and well-informed patients. The integration of mobile apps proves invaluable in maintaining comprehensive records of patients' experiences between medical appointments.

Conference:

Presenting Author: Martinezlago N

Authors: Martinez Lago N, Mancebo Cobos S, Reboredo Rendo C, Alonso de Castro B, Vazquez Ferreiro E,

Keywords: Neuroendocrine tumor, APP, empowerment,

#3137 Empowerment survey for patients with neuroendocrine tumors - A pilot study in Spanish population

Introduction: Quality of life is very important in patients with neuroendocrine tumors (NET), but other aspects such as satisfaction and empowerment of patients have been less studied. In Spain, there is a lack of validated cancer empowerment questionnaires.

Conference: 18th Annual ENETS Concerence (2021)

Presenting Author: Hernando J

Authors: Hernando J, Sampedro-Núñez M, Muñoz de Nova J, Triviño E, Vázquez G,

Keywords: empowerment, online survey, patient advocacy,

#1885 Web-Based Tailored Information and Support for Patients with a Neuroendocrine Tumor

Introduction: Patients with a neuroendocrine tumour (NET) frequently experience physical and psychosocial complaints. Novel strategies to provide information to optimize supportive care in these patients are of interest.

Conference: 14th Annual ENETSConcerence (2017)

Presenting Author: de Hosson L

Authors: De Hosson L, Bouma G, Van Essen H, De Bock G, De Groot D,

Keywords: neuroendocrine tumor, information, quality,

#1884 Towards Optimal Personalized Diet and Vitamin Supplementation in NET Patients; A Feasibility Study

Introduction: Patients with a neuroendocrine tumor (NET) often have gastro-intestinal complaints due to somatostatin analogue (SSA), tumor mass, secretion of neuroendocrine amines or treatment. This can lead to impaired absorption of critical food components such as vitamins. Serotonin producing NET patients may also have low plasma tryptophan.

Conference: 14th Annual ENETSConcerence (2017)

Presenting Author: de Hosson L

Authors: De Hosson L, Bouma G, Van Essen H, Sijtema B, Huitema S,

Keywords: diet, vitamin, neuroendocrine tumor, somatostatin,

#881 Web-Based Tailored Information and Support for Patients with a Neuroendocrine Tumor

Introduction: Patients with neuroendocrine tumors (NET) frequently experience physical and psychosocial complaints. Optimal patient information can form an essential aspect of supportive care. To give NET patients continuous access to information, we developed a web-based tailored information and support system.

Conference: 11th Annual ENETSConcerence (2014)

Presenting Author:

Authors: Bouma G, De Vries E, Wymenga M, Walenkamp A,

Keywords: neuroendocrine, tumor, information, support, distress, quality, empowerment,