Empowerment survey for patients with neuroendocrine tumors - A pilot study in Spanish population

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Introduction: Quality of life is very important in patients with neuroendocrine tumors (NET), but other aspects such as satisfaction and empowerment of patients have been less studied. In Spain, there is a lack of validated cancer empowerment questionnaires.

Aim(s): The aim of the present study is to conduct a pilot test with an online survey of patient’s empowerment in NET in the Spanish population.

Materials and methods: The Spanish survey was designed with previous general health empowerment questionnaires (Health Education Impact Questionnaire, Maunsell 2014), internal hospital satisfaction scores, and direct feedback from NET-España Patient Advocacy group. The final survey was approved by GETNE Academy taskforce. Anonymous online survey was conducted between August and November 2020 in NET patients from NET-España association in Spain.

Conference: 18th Annual ENETS Concerence (2021)

Presenting Author: Hernando J

Authors: Hernando J, Sampedro-Núñez M, Muñoz de Nova J, Triviño E, Vázquez G,

Keywords: empowerment, online survey, patient advocacy,