Abstract Library

#4484 Experiences of combining narrative care and case care in the nursing of patients with neuroendocrine tumours

Introduction: Patients with neuroendocrine tumours have a long course of disease, facing not only physical pain but also complex psychological changes.

Conference:

Presenting Author: Tang Y

Authors: Xie W, Gu T, Tang Y, Liu G, Zhu Y,

Keywords: neuroendocrine tumour, narrative care, case care,

#4328 Health-related quality of life (HRQL) and supportive care needs (SCN) of gastroenteropancreatic neuroendocrine tumours (GEP-NET) in a Swiss NET Centre

Introduction: Health-related quality of life (HRQL) and supportive care needs (SCN) of patients with gastroenteropancreatic neuroendocrine tumours (GEP-NET) remain understudied. Assessing and identifying the affected domains of HRQL and SCN of the patients with GEP-NET is part of the nursing practice and may contribute to adapt the nursing care.

Conference:

Presenting Author: Ho J

Authors: Ho J, Abdulle A, Messerli O, Eicher M, Schaefer N,

Keywords: gastroenteropancreatic neuroendocrine tumour, health related quality of life, quality of life, supportive care needs, unmet needs,

#4295 Are patients on somatostatin analogue therapy receiving high quality holistic cancer nursing care?

Introduction: SSA is indicated for the treatment of G1 and some G2 gastroenteropancreatic neuroendocrine tumours (GEP-NETs) of midgut, pancreatic or unknown origin in adult patients with unresectable locally advanced or metastatic disease. As these types of cancer have much lower proliferation rates than common cancers, they are not exclusively considered cancer. It is hypothesised these patients may subsequently receive sub-standard cancer care. Furthermore, patients who are diagnosed with metastatic G3 neuroendocrine cancers will require systemic treatment with significant side effect profiles impacting negatively on quality of life.

Conference:

Presenting Author:

Authors: Wotherspoon I,

Keywords: Cancer nursing,

#4096 Co-production of patient information: A model for today’s practice

Introduction: According to the British Medical Association, good quality patient information is fundamental to effective, patient-centred, quality care. It rightly considers patients as partners in their care, “Co-production involves engaging groups of people who use healthcare services, in equal partnership; at the earliest stages of service design, development and evaluation. It acknowledges that people with ‘lived experience’ of a particular condition are often best placed to advise on what support and services will make a positive difference to their lives.” (NHS England) The re-introduction of a liver transplantation programme in the UK for selected patients with a Neuroendocrine Neoplasm offers new opportunities to improve survival and quality of life: good quality information is a key tool for informed consent.

Conference:

Presenting Author:

Authors: Jervis N, Ellis C, Smith S, Shah T, Lewis K,

Keywords: Liver Transplantation, Co-production, Patient Information, Lived Experience Contribution,

#3579 Setting up of a national liver transplant programme for neuroendocrine tumor liver metastases in UK and Ireland: Opportunities for collaborations in clinical study and research

Introduction: Liver transplantation [LT] for unresectable neuroendocrine tumor liver metastases [NET LM] is one of three new cancer indications in UK and Ireland. Transplant benefit is only proven using the Milan criteria so patient selection needs to be meticulously objective. We have therefore created a national MDT to provide a formal framework, aid patient selection, oversee data collection, monitor performance, provide training and education, deliver equity of access, facilitate research and clinical trials.

Conference:

Presenting Author:

Authors: Shah T, Gibbs P, Moore J, Venkataraman H, O'Toole D,

Keywords: liver transplantation, neuroendocrine tumor liver metastasis, neuroendocrine tumor surgery,