Abstract Library

#4096 Co-production of patient information: A model for today’s practice

Introduction: According to the British Medical Association, good quality patient information is fundamental to effective, patient-centred, quality care. It rightly considers patients as partners in their care, “Co-production involves engaging groups of people who use healthcare services, in equal partnership; at the earliest stages of service design, development and evaluation. It acknowledges that people with ‘lived experience’ of a particular condition are often best placed to advise on what support and services will make a positive difference to their lives.” (NHS England) The re-introduction of a liver transplantation programme in the UK for selected patients with a Neuroendocrine Neoplasm offers new opportunities to improve survival and quality of life: good quality information is a key tool for informed consent.

Conference:

Presenting Author:

Authors: Jervis N, Ellis C, Smith S, Shah T, Lewis K,

Keywords: Liver Transplantation, Co-production, Patient Information, Lived Experience Contribution,

#4093 Evaluation of the utility of group therapy as a mechanism of delivering facilitated psychosocial support to those with a neuroendocrine neoplasm diagnosis

Introduction: Anxiety, uncertainty and reduced psychosocial well-being have been reported in those with neuroendocrine neoplasms. There has been an increasing demand for facilitated psychosocial support from our UK community, that can outstrip capacity. There is evidence that group therapy can provide a cost- efficient and outcome- effective method of treatment: reducing wait times and improving accessibility. Group therapy is a term that can be applied to any kind of psychotherapy that is delivered to a group.

Conference:

Presenting Author: Hargreaves R

Authors: Jervis N, Winter K, Hargreaves R, Ellis C,

Keywords: Group Therapy, Unmet Needs, Psychosocial Support,

#3400 Addressing professional development needs in neuroendocrine cancer nursing

Introduction: Adult Neuroendocrine Cancer nursing is a highly specialised field where expertise in both knowledge and appropriate skills can make a significant contribution - especially in the promotion and maintenance of high standards of practice, education for the patient and the application of safe evidence-based knowledge and skills the patient requires when diagnosed with a rare disease.

Conference:

Presenting Author: Jervis N

Authors: Jervis N, Bouvier C, Talbot L, Quirk K, Chesser B,

Keywords: education, neuroendocrine, nursing,

#3288 Not waving but drowning?

Introduction: The disruptive impact COVID19 has had on cancer care availability and resources may yet have far-reaching consequences, physically and mentally, for those with neuroendocrine Cancer.

Conference: 18th Annual ENETS Concerence (2021)

Presenting Author: Jervis N

Authors: Jervis N,

Keywords: support, unmet needs, psychosocial care, impact of COVID,

#2978 Policy Barriers to Increasing Access to Radioligand Therapy for Neuroendocrine Cancers

Introduction: Radioligand therapy is a relatively new treatment approach used in a small number of neuroendocrine cancers and has been shown to improve overall survival and quality of life. Yet because it uses radioactivity, there are particular barriers to its greater integration into cancer care. As neuroendocrine cancers are rare, it is all the more urgent that these barriers be understood and overcome so that this treatment modality can become available to all patients who may benefit.

Conference: 17th Annual ENETSConcerence (2020)

Presenting Author: Merkel C

Authors: Merkel C, Whicher C, Herrmann K, Jervis N, Ćwikła J,

Keywords: PRRT, peptide receptor radionuclide therapy, radioligand therapy, policy, multidisciplinary care, nuclear medicine, neuroendocrine cancer,