Co-production of patient information: A model for today’s practice

#4096

Introduction: According to the British Medical Association, good quality patient information is fundamental to effective, patient-centred, quality care. It rightly considers patients as partners in their care, “Co-production involves engaging groups of people who use healthcare services, in equal partnership; at the earliest stages of service design, development and evaluation. It acknowledges that people with ‘lived experience’ of a particular condition are often best placed to advise on what support and services will make a positive difference to their lives.” (NHS England) The re-introduction of a liver transplantation programme in the UK for selected patients with a Neuroendocrine Neoplasm offers new opportunities to improve survival and quality of life: good quality information is a key tool for informed consent.

Aim(s): To produce a resource that was grounded in expert clinical information: accessible and appropriately matched to patient (and family) informational needs.

Materials and methods: Working with NEN and liver transplantation experts at Queen Elizabeth Hospital, Neuroendocrine Cancer UK partnered with patients, families and advocates, to develop a patient information resource. Following informal discussions with the Neuroendocrine Cancer community - a 'topic-specific' workshop, was held to further explore informational requirements. A Working Group that included both direct patient and nursing experience of liver transplantation and NENs was established.

Conference:

Presenting Author:

Authors: Jervis N, Ellis C, Smith S, Shah T, Lewis K,

Keywords: Liver Transplantation, Co-production, Patient Information, Lived Experience Contribution,