#3415
The PEI-Q paradox: Qualitative assessment of exocrine function in NET patients treated with SSAs
Introduction:
Somatostatin-analogues (SSAs) are first-line treatment of unresectable, symptomatic neuroendocrine tumors (NETs), though can cause pancreatic exocrine insufficiency (PEI). PEI symptoms of diarrhoea, bloating, and steatorrhea overlap with those of NETs (carcinoid sequelae), and both have a negative impact on quality of life. The Pancreatic Exocrine Insufficiency Questionnaire (PEI-Q) can be used to assess PEI; however, we hypothesise that the score will be unreliable in SSA-induced PEI due to concurrent improvement of carcinoid symptoms.
Conference:
Presenting Author:
Hall L
Authors:
Hall L,
Powell-Brett S,
Thompson O,
Bradley E,
Smith S,
Keywords:
Pancreatic Exocrine Insufficiency (PEI),
Neuroendocrine Tumor (NET),
Patient Reported Outcome,
#2811
Improving Diagnosis Times as Part of the Transformation of the South Wales NET Service
Introduction:
Transformation of the South Wales NET service in late 2017 introduced new specialised staff, gastroenterology-led clinics and improved MDTs with a particular emphasis on educating referring specialties. This has led to improved overall patient experience, satisfaction and quality of life. NETs are recognised world-wide for their lengthy diagnosis times.
Conference:
17th Annual ENETSConcerence (2020)
Presenting Author:
Amin K
Authors:
Amin K,
Gruber M,
Shayan-Arani H,
Taylor R,
Powell C,
Keywords:
neuroendocrine,
tumours,
diagnosis,
survival,
gastroenterology,
surgery,
new service,
nets,
south wales,
midgut,
pancreatic,
paraganglioma,
incidental,
#2130
Remote Tracking of Symptoms, QoL and Wellbeing within the New Wales NET Service
Introduction:
Patients with NETs have worse health-related quality of life (HRQoL) than the general population. Technological advances have significantly increased electronic patient-reported outcome (ePRO) data collection capabilities. There is little longitudinal PRO/ePRO data and limited data on gastrointestinal symptoms, particularly ‘diarrhoea’, in NET patients.
Conference:
15th Annual ENETSConcerence (2018)
Presenting Author:
Reynolds M
Authors:
Reynolds M,
Tucker L,
Ankita B,
Powell C,
Hopps R,
Keywords:
Quality of Life,
Symptoms,
ePRO,
Diarrhoea,
NET service,
Longitudinal Data,
CABARET,
app,
