Abstract Library

#2811 Improving Diagnosis Times as Part of the Transformation of the South Wales NET Service

Introduction: Transformation of the South Wales NET service in late 2017 introduced new specialised staff, gastroenterology-led clinics and improved MDTs with a particular emphasis on educating referring specialties. This has led to improved overall patient experience, satisfaction and quality of life. NETs are recognised world-wide for their lengthy diagnosis times.

Conference: 17th Annual ENETSConcerence (2020)

Presenting Author: Amin K

Authors: Amin K, Gruber M, Shayan-Arani H, Taylor R, Powell C,

Keywords: neuroendocrine, tumours, diagnosis, survival, gastroenterology, surgery, new service, nets, south wales, midgut, pancreatic, paraganglioma, incidental,

#2130 Remote Tracking of Symptoms, QoL and Wellbeing within the New Wales NET Service

Introduction: Patients with NETs have worse health-related quality of life (HRQoL) than the general population. Technological advances have significantly increased electronic patient-reported outcome (ePRO) data collection capabilities. There is little longitudinal PRO/ePRO data and limited data on gastrointestinal symptoms, particularly ‘diarrhoea’, in NET patients.

Conference: 15th Annual ENETSConcerence (2018)

Presenting Author: Reynolds M

Authors: Reynolds M, Tucker L, Ankita B, Powell C, Hopps R,

Keywords: Quality of Life, Symptoms, ePRO, Diarrhoea, NET service, Longitudinal Data, CABARET, app,