A virtual patient handbook

#4288

Introduction: Neuroendocrine cancer has lower public recognition than more common cancer types and when this is combined with geographical inequalities in neuroendocrine cancer care across the UK, patients can often find themselves reliant on online resources to educate themselves about the disease.

Aim(s): To provide a centralised, enhanced learning experience for neuroendocrine cancer patients and supporters, catering to a range of learning styles. A supplementary aim was to reduce the costs associated with printing, storing and posting hard-copy resources and to lessen the potential waste created when resources become outdated.

Materials and methods: With the proliferation of online video platforms, videos are now a common and widely accepted resource for learning. Capitalising on this, the handbook content was translated into both audio-visual and written formats with narrated ‘explainer’ videos and Q&As with medical professionals. The handbook also allows for live links to supporting resources and provides the opportunity to promote existing charity content such as podcasts and expert presentations. All videos have closed captions for those with hearing-impairments and all information was sourced and fact-checked from expert consensus guidance and evidence-based research, adapted to meet UK literacy levels.

Conference:

Presenting Author:

Authors: Chesser B,

Keywords: patient handbook, digital resources, patient information, multi-media,