Survivorship Care Model for Patients with Metastatic Neuroendocrine Tumors


Introduction: Neuroendocrine tumors(NET)are rare often indolent tumors. Approximately 22% of patients (pt's) present with metastatic disease at diagnosis and can live with metastatic disease for years. These pt's often don't identify as cancer survivors and don't meet the criteria for care in traditional survivorship clinics

Aim(s): To develop, implement and evaluate a multidisciplinary NET wellness clinic to address the unique survivorship/holistic needs of pt's living with metastatic NET

Materials and methods: Pt's from the UCSF NET support group participated in a focus group to assess the need for and interest in a multidisciplinary NET wellness clinic. A clinic was established comprised of a dietician, NP, social worker, cancer resource specialist and exercise counsellor. Pt's are seen in the clinic by each provider then given the opportunity to have follow up appointments with the providers as needed. At completion of each visit, pt's are asked to complete a survey

Conference: 17th Annual ENETSConcerence (2020)

Presenting Author: Laffan A

Authors: Laffan A,

Keywords: neuroendocrine, survivorship, multidisciplinary, metastatic,

To read the full abstract, please log into your ENETS Member account.