#3192
Clinical epidemiology of patients with neuroendocrine tumors (NETs) in Spain, using electronic health records (EHRs) and big data techniques
Introduction:
The epidemiology and clinical features of NETs are best understood in large, population-based registries with available follow-up information. Real-word evidence and “Big Data” techniques hold potential to increase understanding of the disease and help identify new therapeutic strategies, through analysis of large clinical datasets contained in EHRs.
Conference:
18th Annual ENETS Concerence (2021)
Presenting Author:
Authors:
Marazuela M,
de La Cruz G,
Grandoulier A,
De la Puente M,
López C,
Keywords:
neuroendocrine tumor,
big data,
epidemiology,
electronic health records,
#2757
Effectiveness of Lanreotide 120 mg (LAN) in Patients with Locally Advanced or Metastatic Pancreatic Neuroendocrine Tumours (panNET) in Routine Clinical Practice
Introduction:
PanNETs are the second most common type of tumour of the pancreas. Most patients have metastatic disease at diagnosis with median survival ranges from 2 to 5 years. Somatostatin analogs (SSAs) control symptoms and reduce tumour growth in panNET. In the panNET subgroup of the CLARINET study, lanreotide autogel 120 mg reduced the relative risk of progression or death by more than 40% compared with placebo at week 96.
Conference:
17th Annual ENETSConcerence (2020)
Presenting Author:
Authors:
Teulé A,
Alonso T,
González E,
De La Cruz G,
Houchard A,
Keywords:
NET,
lanreotide,
pancreas,
study,
#2058
On-going Evaluation of the Use of Resources and the Costs (UR/C) Associated with Controlled or Uncontrolled Carcinoid Syndrome (CS) in Patients (pts) with Neuroendocrine Tumours (NETs): RECOSY Study Design
Introduction:
NET pts have high rates of mortality and morbidity, as wells as decreased health-related quality of life (HRQoL) due to CS. Though there is little research on the economic impact of CS, recent studies show that some symptoms, i.e. diarrhoea, are associated with higher healthcare expenditure and use of resources.
Conference:
15th Annual ENETSConcerence (2018)
Presenting Author:
Authors:
Custodio A,
Carmona-Bayonas A,
Villabona C,
Perez M,
de La Cruz G,
Keywords:
neuroendocrine tumors,
carcinoid syndrome,
use of resources,
costs,
#1851
Ecological Study to Assess the Management of Gastroenteropancreatic Neuroendocrine Tumors in Spain
Introduction:
Neuroendocrine tumors (NET) have widely varying characteristics, localizations, and treatments. Consequently, a multidisciplinary approach to diagnosis and treatment is necessary. Given the heterogeneous management of this disease, we conducted an ecological survey to assess usual clinical practice in Spain.
Conference:
14th Annual ENETSConcerence (2017)
Presenting Author:
Authors:
Guardeño R,
García P,
Ginés R,
De la Cruz G,
Keywords:
gastrointestinal,
neuroendocrine,
pancreatic tumors,
survey,
Spain,
