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#23 Developing a customized database for NET in a developing country

Introduction: The establishment of a neuroendocrine registry is extremely hard in developing countries. Many patients miss follow-up after surgical procedures and many die in different hospitals with a distinct national security health system number. As in any developing country, Brazil has a large movement of people to urban areas, making the tracking of former addresses impossible for patients who were treated some years prior. Therefore, it is more feasible to evaluate a demographic distribution of neuroendocrine tumors by topography or histological subtype, but the analysis of clinical events, such as progression-free survival, disease-free survival, time to progression or overall survival, is compromised.

Conference: 7th Annual ENETSConcerence (2010)

Presenting Author: Garicochea B

Authors: Bós A, Shavinsky C, Pereira de Carvalho G, Barcellos de Almeida P, Scandura K,

Keywords: NET, software, developing country, registry,