Patient Survey Devoted to Characterizing Experience and Expectations of Patients with Neuroendocrine Tumors (NET)

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Introduction: Patients (pts) with NET experience consequences of disease progression and treatments; their preferences can influence the choice and success of therapeutic strategies.

Aim(s): To better characterize the experience and expectations of pts with NET.

Materials and methods: An anonymous online survey was open 16-Jan to 7-Apr 2017 to pts and relatives living in France and registered in the NET or multiple endocrine neoplasia sections of a patient website. The French patient group APTED assisted with survey dissemination. Questions explored 5 dimensions: patient profile; medical journey to diagnosis; quality of life (QoL); information expected; and carcinoid syndrome (CS).

Conference: 15th Annual ENETSConcerence (2018)

Presenting Author: SARABI M

Authors: Sarabi M, Gueguen D, Walter T, Hentic O, Baudin E,

Keywords: Patient Report Outcomes, Neuroendocrine Tumor, Quality of life,