Abstract Library

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#4442 Prevalence of second primary malignancies in patients with neuroendocrine tumours – Experience from a tertiary reference centre

Introduction: Neuroendocrine tumours (NETs) constitute a diverse group of tumours. NETs are often diagnosed late, due to nonspecific symptoms. Second Primary Malignancies (SPMs) have been reported in up to 25% of NETs and their incidence has been described as negative predictor of OS.

Conference:

Presenting Author:

Authors: Komarnicki P, Woliński K, Maciejewski A, Musiałkiewicz J, Gut P,

Keywords: neuroendocrine neoplasm, neuroendocrine tumour, second primary malignancy, secondary malignancy, second primary neoplasm,

#4352 What can a reference centre offer to patients? Evolution of first visits for neuroendocrine and endocrine tumours and its relation to clinical trials availability.

Introduction: Endocrine and neuroendocrine neoplasia (NEN), which include gastroenteropancreatic neuroendocrine tumours, thyroid cancer and adrenal carcinoma, have a low incidence, making their diagnosis and treatment difficult. Due to this complexity, patients should be managed at specialised centres; however, the lack of official referral networks complicates the concentration of cases.

Conference:

Presenting Author: Martinez-Badal S

Authors: Martínez-Badal S, Hernando Cubero J, García Alvarez A, Elguero B, Alcantara A,

Keywords: Neuroendocrine, Clinical Trial, Reference Centre, Patient referral,

#4286 Clinicopathologic characteristics and survival outcomes in patients with gastroenteropancreatic neuroendocrine neoplasms at a Latin American reference centre

Introduction: Neuroendocrine neoplasms (NEN) have markedly increased over the past two decades. However, published data from Latin American countries remain scarce.

Conference:

Presenting Author: Cruz Diaz W

Authors: Cruz Diaz W, Paitan Amaro V, Haro Varas J, Macetas Núñez J, Leonardo Carbajal A,

Keywords: Well-differentiated, Gastroenteropancreatic neuroendocrine tumour, Retrospective study, overall survival,

#2100 OPERA: Observational Study of Perception of Information and Quality of Life in Patients with Neuroendocrine Tumors Starting Lanreotide – Study Design

Introduction: Information provided to patients about burden and treatment of neuroendocrine tumors (NETs) may ease treatment adherence, outpatient monitoring, and improve quality of life (QoL), but can also cause anxiety. Data on how to individually adapt materials are insufficient and mainly derived from clinical trials.

Conference: 15th Annual ENETSConcerence (2018)

Presenting Author:

Authors: Gueguen D, Hammel P,

Keywords: patients perception of information, QoL, lanreotide,