Abstract Library

#3963 Infrastructure FOr Rare Cancer in the NEtherlands, towards a comprehensive platform for early detection and diagnosis of rare cancers (FORCE), and especially neuroendocrine neoplasms (NEN)

Introduction: NEN consist of a heterogeneous group of rare tumors. For these patients, clinical trials requiring a high number of patients are often infeasible. Often, the prognosis is poor due to late diagnosis and fewer available treatment options as compared to patients with common cancer types. In common cancers, ultrasensitive molecular profiling of circulating cell-free DNA (USccfDNA) based tests are promising to improve diagnosis, detection of minimal residual disease (MRD), and recurrence. Data needed to apply USccfDNA in NEN is lacking.

Conference:

Presenting Author:

Authors: de Hosson L, Pieterman C, Fehrmann R, de Herder W, Jalving M,

Keywords: circulating cell free DNA, biobank, databank, early detection,

#2772 Vitamin Supplementation and a Personalized Diet in Patients with Neuroendocrine Tumors: The DIVIT Study

Introduction: Patients with neuroendocrine tumors (NETs) are at risk for vitamin deficiencies and poor nutritional status due to excessive serotonin production, diarrhea, previous gastrointestinal surgery, and/or treatment with somatostatin analogues (SSA). Little knowledge exists about vitamin deficiency and how patients should be supported for the deficiencies they develop during their long-lasting disease.

Conference: 17th Annual ENETSConcerence (2020)

Presenting Author: Stelwagen J

Authors: Stelwagen J, de Hosson L, Sijtema B, van Faassen M, Kema I,

Keywords: Vitamins, nutritional support, supplementation, vitamin deficiency, single-arm intervention,

#1885 Web-Based Tailored Information and Support for Patients with a Neuroendocrine Tumor

Introduction: Patients with a neuroendocrine tumour (NET) frequently experience physical and psychosocial complaints. Novel strategies to provide information to optimize supportive care in these patients are of interest.

Conference: 14th Annual ENETSConcerence (2017)

Presenting Author: de Hosson L

Authors: De Hosson L, Bouma G, Van Essen H, De Bock G, De Groot D,

Keywords: neuroendocrine tumor, information, quality,

#1884 Towards Optimal Personalized Diet and Vitamin Supplementation in NET Patients; A Feasibility Study

Introduction: Patients with a neuroendocrine tumor (NET) often have gastro-intestinal complaints due to somatostatin analogue (SSA), tumor mass, secretion of neuroendocrine amines or treatment. This can lead to impaired absorption of critical food components such as vitamins. Serotonin producing NET patients may also have low plasma tryptophan.

Conference: 14th Annual ENETSConcerence (2017)

Presenting Author: de Hosson L

Authors: De Hosson L, Bouma G, Van Essen H, Sijtema B, Huitema S,

Keywords: diet, vitamin, neuroendocrine tumor, somatostatin,

#1766 Videoconsultation During Follow-Up Care of Patients with a Neuroendocrine Tumor.

Introduction: Patients with a neuroendocrine tumor (NET) are increasingly treated in expert centers leading to longer travel times for medical consultations. Videoconsultation (VC) potentially allows remote guidance of patients.

Conference: 14th Annual ENETSConcerence (2017)

Presenting Author: Bouma G

Authors: Bouma G, De Hosson L, Van Essen H, De Vries E, De Groot D,

Keywords: NET, videoconsultation, telemedicine,