Abstract Library

#3041 Resource Use in Patients with Carcinoid Syndrome: A Retrospective Analysis Using the French Health Insurance National (SNDS) Database

Introduction: About 20% of patients (pts) with neuroendocrine tumors (NET) suffer from carcinoid syndrome (CS), mainly from ileum and lung NET. Pts with CS experience symptoms such as diarrhea, flushes and cardiac complications. The diarrhea occurs in almost all pts with CS and can be truly debilitating. Therefore, on top of the tumor, the burden of the symptoms further impairs quality of life and is associated with additional costs related to symptom management and pts follow-up.

Conference: 17th Annual ENETSConcerence (2020)

Presenting Author: Walter T

Authors: Walter T, Lapeyre Mestre M, Gueguen D, Bouille C, Laborey M,

Keywords: Carcinoid syndrome, resources, health economics,

#2263 Patient Survey Devoted to Characterizing Experience and Expectations of Patients with Neuroendocrine Tumors (NET)

Introduction: Patients (pts) with NET experience consequences of disease progression and treatments; their preferences can influence the choice and success of therapeutic strategies.

Conference: 15th Annual ENETSConcerence (2018)

Presenting Author: SARABI M

Authors: Sarabi M, Gueguen D, Walter T, Hentic O, Baudin E,

Keywords: Patient Report Outcomes, Neuroendocrine Tumor, Quality of life,

#1920 Optimising Followup after Complete Surgical Resection of Gastrointestinal Neuroendocrine Tumours- A Delphi Process to Produce Expert Consensus in an Area Lacking Clinical Evidence

Introduction: Optimal follow-up for completely resected GI-NETS has not been well defined, with heterogeneity in awareness and application of existing guidelines.

Conference: 14th Annual ENETSConcerence (2017)

Presenting Author:

Authors: Moody L, Segelov E, Chan D, Carsley S, Strosberg J,

Keywords: RAM,NET,

#1366 CommNETS: Formation of an International Commonwealth Countries NET Partnership

Introduction: Neuroendocrine tumours (NETs) care is challenging in Canada, Australia and New Zealand due to small populations in large geographical space, limited drug funding, and lack of NET awareness. There is a need for collaboration to focus research and improve care and outcomes for NET patients in these nations with similar health systems.

Conference: 13th Annual ENETSConcerence (2016)

Presenting Author: Singh S

Authors: Singh S, Lawrence B, Chan D, Pavlakis N, Segelov E,

Keywords: research, society,

#1358 Identifying and Prioritising Gaps in Neuroendocrine Tumour Research - Results of the Delphi Consensus Project of the Commonwealth Neuroendocrine Tumour Research Collaboration (CommNETS)

Introduction: The newly formed CommNETS group used the robust Delphi methodology with broad stakeholder engagement to form a strategic research agenda.

Conference: 13th Annual ENETSConcerence (2016)

Presenting Author: Segelov E

Authors: Segelov E, Chan D, Harris-Roxas B, Lawrence B, Pavlakis N,

Keywords: research, gaps, priorities, Delphi ,